Urgent: Help us accelerate breakthroughs for brain research

“It terrified me then and still does,” Dean says. “Thirteen years on, I still can’t sleep, because tomorrow isn’t kind to people with MND.”

Dean’s journey is heartbreaking, but his courage drives research that could change lives. At just 29, Dean began noticing subtle symptoms: twitching muscles, weakness in his legs. After years of uncertainty and misdiagnoses, a genetic blood panel revealed the truth: Dean had a rare SOD1 mutation of MND, a disease that gradually robs people of movement, speech, and independence.

Despite the crushing diagnosis, Dean fought to build a family. He and his wife endured the emotional and financial strain of IVF to ensure their children would be free from the gene. Today, he treasures every moment with his two daughters, even as his strength fades.

At NeuRA, our scientists are working to understand and treat MND. We’re expanding clinical trials, investigating new therapies and pushing for faster access to life-saving treatments. But time is not on the side of families like Dean’s.

Please make a gift today to support urgent research that can lead to breakthroughs in diagnosis, treatment, and prevention. With your help, we can accelerate progress and give families facing devastating diagnoses more time.